Cystic Fibrosis Clinics

NEO Kids is proud to offer two Cystic Fibrosis clinics!  Each clinic is made up of a team of experts that work together to manage this complex illness with the goal of improving health and life expectancy.

Our pediatric clinic is sponsored by Cystic Fibrosis Canada and NEO Kids.

Our adult clinic connects patients with Dr. Elizabeth Tullis from St. Michael’s Hospital in Toronto.

 

 

What is Cystic Fibrosis?

Cystic Fibrosis (CF) is an inherited disease.  CF affects mainly the lungs and the digestive system, but other organs can also be affected.

In the lungs, CF causes severe breathing problems.  In the digestive tract, thick mucus makes it extremely difficult to digest and absorb adequate nutrients from food.

Signs and symptoms of CF include:

  • Constant cough which expels thick mucus
  • Excessive appetite, with weight loss
  • Bowel disturbances
  • Skin which tastes salty
  • Repeated or prolonged bouts of pneumonia

How is CF diagnosed?

If a physician expects CF, he or she will probably suggest a “sweat chloride test” to measure the amount of salt in the sweat.  A high salt level, along with other symptoms, points to the presence of CF.  Genetic tests are also being used to diagnose the disease.

How is CF treated?

Treatment programs are tailored to individual needs and vary depending on the stage of the disease and which organs are affected.

Treatments followed at home usually include:

  • Performing regular airway clearance to help prevent a buildup of thick mucus in the lungs
  • Taking pancreatic enzymes with all meals and snacks to aid digestion
  • Taking nutritional supplements and vitamins to promote good nutrition
  • Taking antibiotics to treat lung infections
  • Exercise

When do clinics occur?

Pediatric clinics occur twice a month, usually on Mondays.

Adult clinics occur twice per year.  Telemedicine (OTN) follow-up appointments are also available.

What to Expect

You will visit the clinic every three months (and more often if needed).

It is ideal to pre-order your medications two weeks prior to your CF visit.  Contact the Pharmacist at 705-523-7100 x5511.

At each visit, we will complete a full health assessment, including your height, weight, vital signs.  A throat swab or sputum sample will also be collected.

Every second visit after the age of six, a PFT (pulmonary function test) will be performed to assess your lung function capacity.

Blood work will be collected yearly to monitor your liver function, blood sugars, and vitamin levels.  Chest x-rays will also be done yearly.

After the age of 10, an oral glucose intolerance test will be done yearly to check for CF-related diabetes.

Referrals

Pediatric patients are referred by their Pediatrician, Family Physician, Nurse Practitioner, or the Newborn Screening Program.  To refer to pediatric patients to our CF clinic, complete the NEO Kids - Kids Care Centre Referral Form, by clicking HERE.

Adults with CF can access the clinic directly by calling 705-523-7120 ext. 3263.

 

 

Contact Information

For more information, please email neokidsinfo@hsnsudbury.ca.

Name  Title  Telephone # 
 Sharri-Lynne Zinger      CF Registered Nurse      705-523-7120 ext. 3263
 Nicole Graham  Physiotherapist  705-523-7120 ext. 1461
 Jody Coles  Dietitian  705-523-7120 ext. 1554
 Josee Cholette  Social Worker  705-523-7120 ext. 1483
 Tiffany Niro  Pharmacist  705-523-7100 ext. 5511
 Clerical Support    705-523-7120 ext. 3508